Tuesday 15 November 2011

2011-06-27 – A few words from parents


We already are in the new hospital for a week. Hundreds of people read Mary’s diary every day. It means a lot to us because we know that we are not alone. Thank you for your presence and kindness. Many of you give also funds for Mary’s treatment .We want to thank you for it once again. Every amount of many we gather at Mary’s account. At the moment we do not pay for her treatment but when she comes home, in what we strongly believe, her path of healing and rehabilitation will be very long.
In the hospital we see many ill children, for example Magda, that is in a comma, or Alan born with heart disease and without hands. Their parents are with them all the time. They believe in them and love them very much. It’s good to meet people that think like us, because it is not always like that. Here we would like to tell about one conversation which we had with a nurse in previous hospital. She said that when the children who were lying on their ward are coming after a couple of years it’s not nice to watch these of them who are ill… But none of us has chosen to have an ill child., and what is more the child hadn’t chosen it either. It is sad that a person with such views works in such a place, with innocent little people. But it also happens that there are parents who despise an ill child. We heard about a couple that left their child with Down Syndrome, because it didn’t fit to their world. Their told the nurses that they have enough money to have healthy children.
Recently we read a blog about 4-years old quintuplets that were born in Poznan in 26 HBD all weighing 800 g. Doctors say that it is a miracle that they all came out of the hospital. Their parents make great efforts to provide them the best quality of life despite of such problems as ROP, heart diseases, CNS defects… Only now we see how many sick children are among us. And what is more how many people devote their lives to them. On the other hand we meet people who think that for such children there is no place in the society…

In the end we would like to explain that the comments (in Polish version) will be published on our site only after sending them on our e-mail. We apologize for this impediment but we don’t want our blog to be a place of “political arguments”. The website was created for people who are truly interested in the history of our daughter. In the beginning the diary was written in our family album, only for ourselves. But when more and more people asked us about our little daughter we decided to make a blog in the Internet. We suggest people, who want our little Mary to die soon, not to spoil their mood and not to visit her website.

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