2011-07-23

Since yesterday I am no longer in incubator, but in bed. It is the third such a change. First bed I received in Lodz. After coming back to Gdansk I was put back into incubator, but after 3 days I was again in bed. When I came here it was decided that I will be lying in the open incubator. But now it’s over with heating… ;). Mammy long was trying to put the tube comfortably, but something wasn’t right. It was bending all the time. Finally  when daddy came they found out that the tube is shortened, and they were told that by the ward head. We are curious why she has done it… Hmh…

Today the doctor on duty made me a flexible indwelling again. She said she doesn’t like when so ill a child doesn’t have one because in case of emergency it must be possible to give the medicines quickly. I don’t like needles, but I must agree she’s right, especially that it’s so difficult to make me an indwelling... She also switched off ECG saying there is no need for me to be connected to it all day. My stay in the hospital is long-term and electrodes hurt my delicate body. It is enough I will have them at night.

2011-07-21

Not so long ago I was a little child, and now I seem to be quite a big baby. I weigh 3700g. My parents didn’t learn x-ray results until today because yesterday the doctor was to busy with painting her nails to provide them information. But now we know everything. It was done to check once again whether I don’t have hydrocephalus. The result is negative. The doctors were worried that my head grows to quickly. On Sunday its circumference was 34 cm, on Monday 35,5 cm. But it was a mistake done during the measurement, because today a nurse measured 33,5 cm. Every time a different nurse measures my head so that’s why the results differ so much. Today while changing a plaster I extubated (the tube came out from trachea). I was then intubated again, this time through right nostril. The previous tube I had for more than 3 weeks. After all of this I slept all day

2011-07-19

My weight is already 3560g. When my mum holds me too long her arm aches ;). Yesterday doctor diminished respirator parameters: oxygen to 45%, breaths to 15 and pressure also a bit. Unfortunately CRP increased again. I was given new antibiotic. My immune system want develop in the hospital, so I continuously have some infection.

Today my milk amount was increased to 70 ml. I am a big girl ;q. The doctor said that I have grown up a lot and soon we will start to think about the tracheotomy. Children feel better with that than with the endotracheal tube. What is more it is easier to give medicines for lungs, especially inhalations. If my lungs improve it will be possible to take out the tracheotomy tube. Then the hole in my neck can close even in 24 hours time. Today grandma Beata and grandpa Zbigniew visited me. They liked me very much. They said that I look after my mum, that I have the same face as she when she was born. I wonder, when I was born everyone said that I look more like my dad, now they say that more and more like my mum ;) Tomorrow I have important examinations: abdominal and brain x-ray. We hope that everything will be fine.

2011-07-17

I surprised my parents on Friday;). My daddy took me into his arms, but I couldn’t calm down. As soon as he gave me to mammy I fell asleep hugging to her. Even when he was checking my blood pressure I didn’t react. No place like mum… ;q

I had a lot of guests today. First aunt Emily with uncle Thomas and in the late evening deacon Damian with father Matthias. I felt very well all day. I had a very good saturation. My parents noticed that I have my own likings and habits. When they covered me with a blanket up to my neck I started to cry and didn’t calm down until I took my hands out of it. Only then I was glad and fell asleep ;).

2011-07-14

During the last 2 afternoons I was sleeping and listening to the classical music – Bach. I weigh 3430g. I am so big! It is easiest to notice by looking at my clothes, which are to small ;) and during hugging. Probably baby colic started to bother me. I cry (soundlessly) horribly. After my anxiousness my mammy hugs me a lot. When she does that I fall asleep immediately. Yesterday my parents made me a photo session. I hate it because the camera’s noise annoys me (my hearing is good ;)). But it will be a souvenir when I grow up. Examination results are getting better, especially CRP.

2011-07-12

In comparison to the last few days I had a very good gasometry today. CRP is similar as recently. Ophthalmologist came in the morning. Dad brought mum to the hospital before going to work so she would be able to speak to her. She couldn’t stay long with me because in the morning there are no visits. Luckily she came for a moment and stroked me ;). Ophthalmologist was positively surprised by the results of the examination. Comparing to the previous one there is an improvement. I still have ROP 4, but retina has attached itself in some parts and it is possible that it will re-attach even more. There is a chance that I will see. Surely not like healthy people, but it’s always something… Maybe not much, but it makes us happy…

2011-07-11

I weigh 3230g. CRP rapidly decreased. The doctor was shocked – in 2 days from 144 to 18. Today we received genetic opinion from Lodz – none disease was confirmed. My mum was checking my sucking reflex. When she put her finger into my mouth I started to suck it immediately. My parents are happy because they doubted whether I can do that as I am spitting the dummy out over and over again.