2011-05-04

It is a very important day!!! I reached 2 kg. I weigh 2020g. I am round. Doctors from Gdansk phoned those in Lodz and there is still no place for me. Despite of that, doctors from Lodz started to consider is there any sense in transporting me there when I cannot be under narcosis. Tomorrow the answer was supposed to be. But my parents didn’t give up. Daddy phoned to professor from Cardiology Ward and asked to take me. She said that the doctors from Gdansk should spoke to her and later they did so. At last she said that she will take me but first my eyes must be repaired in Gdansk. Ward Head spoke with doctors at Zaspa to persuade them to try bringing me under narcosis. Unfortunately, tomorrow nothing can be done, so I will have photocoagulation on Friday morning. My parents are happy, but on the other hand they are full of doubts… Is Friday still in time to help my eyes…? If so, will I manage the narcosis…? And even if this I will withstand, will the treatment help – it is only 30-50% of chances…?

2011-05-03

I weigh 1960g. There is still no place for me… Tomorrow rather nothing will change… Despite the doctors also my daddy phoned there today. We must wait patiently… Moreover it occurred that laser in hospital in Lodz is broken. I don’t know what will happen with my eyes now… Even if they will transport me on Thursday it will be too late to save them… My parents are very worried…

2011-05-02

I finished 3 months today! Unfortunately the laser treatment couldn’t be done. However I was on a “trip” to the hospital at Zaspa and back again ;) but after a 1,5-hour debate and consultations with hospital director it was decided that I cannot be under full narcosis because there is too great risk that I will not survive and this treatment doesn’t save my life but only helps to improve health. My parents went through a nightmare… It is very badly with my eyes. I have stage 3+ of retinopathy. Only 2 days ago I had stage 2. It means that the disease develops very quickly. Ophthalmologist who was about to do the treatment said that if another trial won’t be undertaken in 2-3 days time there will be only 10% of chances that I will see anything… The plan is to make photocoagulation along with catheterization under one narcosis when I will be in Lodz. Asked by my parents, the doctors phoned to Lodz again, but there are still no free beds. They say they will call every day. My parents are very worried what will happen with my eyes if tomorrow or the day after I will not be transported to Lodz.

2011-05-01

Grandparents Alice and Andrew visited me today. They were very happy seeing me so big and pretty. Tomorrow I will be transported by ambulance for newborn babies to the hospital at Zaspa. I will have a photocoagulation laser there which is done to prevent further development of retinopathy (a disease that cause retinal detachment). The treatment will be under narcosis. Remember about me tomorrow…

2011-04-30

I grow… I weigh 1900g – it’s a nice round number. I was behaving rather well today. My mum was holding me on her and changing my nappies. Doctor phoned to Lodz yesterday but unfortunately they still don’t have a free bed for me. She will call them on Wednesday again. Let’s hope that they will find a place soon. As aunt Kate has written in a comment, it is a great day tomorrow… Beatification of John Paul II. We pray for a miracle for me… Tomorrow in a church in Dzierzgon after every mass will money will be collected. It will help my parents in medical treatment. May is a time of many cultural events and friendly people use it for charity actions to collect money also for me. On Monday in Dzierzgon, at 5 p.m. a concert will take place during which funds will be collected. Everyone is invited to the castle hill.

2011-04-29

Today passed peacefully too. My mammy spoke to the Referring Doctor and Ward Head about taking me to Lodz. They were supposed to phone there today. On Sunday Ward Head will be in hospital. I wonder if she called doctors in Lodz and whether there will be a place for me… A lot of people pray for me and keep their fingers crossed.    

2011-04-28

I weigh 1860g. As it was planned, dad called Lodz today. Professor Moll said that I am big enough to make catheterization of my little heart. It’s an examination in which a catheter (thin, flexible tube) is inserted through vein or artery to heart. It will make possible to state what vessels I have got instead of Pulmonary Artery that allow me to live. My doctor will be consulting with professor Maroszynska from Lodz in order to transport me there to the Children Intensive Care Ward. Let’s hope that they will find a vacate bed for me there and I won’t wait long. A journey to Lodz is a little step forward. I received new nappies from my parents, on which I sleep soundly. Most beautiful are those with bears and ducks on them. Aunt Kate said that I cannot be the real Mary, that somebody has taken me and left another child, because I am so “fat” and don’t look like my daddy any more – she has seen the photos.